October 13, 2005

  • EDIT ADD: Dr. came by the house to assess Noah's developmental skills. Christy called me after 2 hours and said that they can't give a diagnosis, but that it really looks like some form of autism. We have to wait for the Psychologist's diagnosis, but it doesn't look good...

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    It's been a while, but I'll make this quick...

    Been busy-went to a staff retreat this week. It was good for everyone, and fun, too! Great orchestra practice last night. Much appreciation to being able to start on time...We have some humongous concerts coming up in San Diego, so I'm a little bit nervous about all of this stuff coming together with choir, orchestra, etc....

    Apple does it again with the new iMac G5 with built in iSight and a remote control that you can point to the screen and do stuff with. NOT TO MENTION THE INCREDIBLE NEW iPOD VIDEO...holy smokes that thing is awesome...and now, of course, iTunes is selling videos on their music store, including TV shows like LOST and Desperate Housewives. I'll have to download LOST from last night because I ran out of space on my DVR and the recording stopped...I've gotta dump all those SNL episodes...Christy is getting mad at me...

    I taught everyone NERTZ at the staff retreat, and they all loved it...yay for passing on the NERTZ traditions...Oh yeah, and I currently reign as NERTZ King, just in case you haven't read Mike's blog.

Comments (5)

  • See, what you need is to get a DVD recorder like me, and then you can make DVDs of all of those wonderful old SNL episodes!

  • Nertz was fun. Maybe next time I won't come in last place! :(

  •   I am so sorry to hear about Baby Noah! I can't imagine how hard it must be to hear something like that. But one thing I do know....You will not be going through this alone. I will always love and support you both as will many many others! Just in the MBC alone you have bunches and God loves you even more than we do!!!!

    Thanks for teaching me Nertz ... I think I may have to start playing more often. After all ..  I did end up on the plus side.( I think it was a plus 2)  I loved it!  I can't wait to see you and Mike battle it out for the title of "Nertz King"... All hail the King!! Or just maybe it is time for a Queen!!!!

  • I've been praying for all of you since you first mentioned the concerns with baby Noah.  I just want to echo what I said then, that in so many ways, autism is much like a learning disability... it takes extra effort and figuring out what works, but in so many cases, that's about the extent of it.  I know that no matter WHAT the final diagnoses, that God gives special kids to special parents because He KNOWS they can rise to the challenge.  Baby Noah is so fortunate to have been born into a family who love him unconditionally and will fight and do all they can to make sure he's given every advantage...

    Psalm 68:19 - Praise be to the Lord, to God our Savior, who daily bears our burdens.

    Psalm 71:5-7
        5 For you have been my hope, O Sovereign LORD,
           my confidence since my youth.

        6 From birth I have relied on you;
           you brought me forth from my mother's womb.
           I will ever praise you.

        7 I have become like a portent to many,
           but you are my strong refuge.

    Psalm 71:14 - But as for me, I will always have hope;  I will praise you more and more.

    1 Thessalonians 5:16-18 - 16Be joyful always; 17pray continually; 18give thanks in all circumstances, for this is God's will for you in Christ Jesus.

    You know what it says in my Bible?  It says that Noah sounds like the Hebrew for comfort.  It's no mistake that you picked that name for him.  Comfort... peace... rest in that.  Rest in the knowledge that God has amazing things planned for your Noah, just as He had planned for the "first" Noah.  Noah was more than just a floating zoo-keeper... he believed the unbelieveable, and stood firm in the face of adversity, and stayed true to the instructions of His Lord.  I know your Noah will do no less than this.....

  • When the unexpected is dropped in our lap, it does take a while to take it all in. At times we must pick ourselves off the floor, or scrape ourselves off the ceiling…then we question…we doubt…One of the biggest shocks of my life was when I was told our baby was special. I couldn’t believe my ears…what had I done? What had this baby done to deserve this? Why? I guess that will always be the question. The one thing I didn’t have to question was my love for this baby. The love of a parent…that no matter what, I would love, protect, & give myself to the shaping of this little mind, soul and body. We didn’t have our baby very long but to this day, my special baby is one of my most sweetest memories.
     
    The doctors told Chuck and I that we would never have a “normal” baby (side note: what is normal anyway? I mean some people call Chuck normal…but we know better! :0) Well, those doctors were wrong in that case…they are sometimes wrong you know!
     
    I never had to doubt if God wanted me to have the children I had. Parenting is the highest calling…I look at my kids now…after thinking I would not have any to survive…and I look at them as my gifts…little packages with bows on top.
     I say all of this not to be preachy…but to say, I know how much you and Christy love Noah…and if there are challenging days ahead, God is faithful grant you the wisdom to parent Noah in the way he should go. I love you and am praying for you both!

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